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The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. NOTES: Includes I famiily caregivers of Medicare beneficiariess age 65 and oolder who resided in comm munity or residen ntial care settin ngs (other thaan nursing ho omes) and receeived help wiith self-care, m mobility or household d activities forr health or fun nctioning reasons. S SOURCE: Daata from the 22011 NHATS and a the compaanion NSOC.
We wish to thank the following individuals for their review of this report: ELISABETH BELMONT, Maine Health CHRISTOPHER M. Assisting g with Houssehold Tasks, Self-Caree, Mobility, and Supervvision Nearly N all carregivers help p older adultts in need off care with hoousehold tassks such as shopping g, laundry, ho ousework, meals, m transp portation, billls, and moneey managem ment, and hom me maintenaance (NAC/A AARP Public Policy Insttitute, 2015; Spillman ett al., 2014; W Wolff et al., 2016).
vii PREPUBLICATION COPY: UNCORRECTED PROOF6 Copyright © National Academy of Sciences. Families Caring for an Aging America Copyright © National Academy of Sciences. Families Caring for an Aging America Acknowledgments The committee and staff are indebted to a number of individuals and organizations for their contributions to this report. Spousal suffering and partner’s depression and cardiovascular disease: The Cardiovascular Health Study. Self-care activities are bathing, dressing, eating, toileting or getting in and out of bed.
REINHARD, Senior Vice President and Director, AARP Public Policy Institute; Chief Strategist, Center to Champion Nursing in America ZALDY S. Caregivers providing care to “high-need” older adults—those who have at least two selfcare needs or dementia—are more likely to help with a wide variety of tasks, including helping with chores, helping the older adult get around the house, keeping track of medications, and making medical appointments. The critical role of caregivers in achieving patient-centered care. p medicine The three Academies work together as the National Accademies off Sciences, E Engineeringg, ovide indepe endent, obje ective analyssis and advicce to the na ation and and Medicine to pro conduct other activities to solve e complex problems and d inform pub blic policy decisions. The domains of the caregiving role include: assistance with household tasks, self-care tasks, and mobility; provision of emotional and social support; health and medical care; advocacy and care coordination; and surrogacy. Family involvement in care transitions of older adults: What do we know and where do we go from here? The statementts and opinio ons containe ed in procee edings are th hose of the convenin participa ants and havve not been endorsed byy other partiicipants, the e planning ccommittee, or the Natio onal Academ mies of Scien nces, Engine eering, and M Medicine. For example, cancer caregivers were more likely than dementia caregivers to provide help in getting in and out of bed, whereas dementia caregivers were more likely to deal with incontinence. Long distance caregivers who live at least one hour from the care recipient are typically involved in providing social and emotional support, advanced care planning, financial assistance, and care-coordination. STONE, Leading Age Center for Applied Research COURTNEY HAROLD VAN HOUTVEN, Durham VA Medical Center and Duke University Medical Center KENNETH W. YOUNG, University of California, Davis Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the conclusions or recommendations nor did they see the final draft of the report before its release. REUBEN, University of California, Los Angeles, and STEPHEN E. They were responsible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Every day or most days (percentage) With chores 44.6 55.6 49.7 38.7 With self-care 10.5 32.0 42.0 8.6 Drive care recipient places 24.8 25.8 19.2 24.2 Help care recipient get around his/her home 14.8 35.7 37.4 12.4 Did you help… WACHTER, University of California, Berkeley GAIL R. Responsibility for the final content of this report rests entirely with the authoring committee and the institution. Yes (percentage) Keep track of meds 61.2 57.4 65.4 36.8 Care recipient take shots or injections 6.3 13.3 12.0 5.3 Manage medical tasks 9.2 17.2 20.5 6.0 With special diet 25.8 40.5 30.9 22.9 With skin care wounds 17.0 34.0 35.2 18.2 Make medical appointments 74.6 59.1 75.0 52.0 Speak to medical provider 65.9 52.1 71.6 47.2 Add/change health insurance 29.3 24.1 30.9 22.5 With other insurance matters 37.7 35.5 47.0 27.6 Population represented (in 1,000s) 2,931 2,745 2,828 9,190 NOTE: Includes family caregivers of Medicare beneficiaries age 65 and older who resided in community or residential care settings (other than nursing homes) and received help with self-care, mobility or household activities for health or functioning reasons.